In all likelihood, you and your partner are not going to live to the same age or have the same medical issues as you age. If you are one of the lucky couples who both maintain their health for a long time, consider yourselves blessed! My experience, with my circle of friends over the age of 60 is that many of us will end up unequally yoked when it comes to health in your old age. The issues surrounding this topic are plentiful but the bottom line is one of you is likely to be more of a caregiver than the other.
I am my husband’s caregiver. I did not realize the weight of this statement until recently. If I was not around, his life span would defintely be shorter for many reasons. I think the largest reason is I am his advocate. I research doctors, drugs and treatments for him. But another important reason is I won’t let him give up fighting to keep what health he has — at least not yet. The latter is probably the hardest part off the job. When your partner does not feel well, and when he is tired or in pain helping them becomes very difficult. The best way to combat many old age issues is to exercise regularly, keep your mind active, and be social. Trying to get your partner to do these things puts you in the position of having to be the “poker and prodder” or more aptly put, the nag!
Being a nag is something I never wanted to be. Left to his own accord my husband would sit in a recliner ALL day and watch TV. This is SO bad for him both physically and cognitively. The issue is the responsibility to keep him from doing this falls on the caregiver. We talk about what is “good” for him and he agrees in principle. But getting him to DO these things is another story. I try to get him to walk at least 2X a day. Actually, I try to get him to walk 1x per hour on his own, even if just a short walk, but even though his Apple watch reminds him, he just won’t do it! So, I settle for 2 quarter mile walks per day as our goal. Even then, he sometimes resists my requests to take that walk. “Later” he will say and I work hard to request again “later” but don’t always succeed due to my own scheduled events and then he has succeeded in avoiding that walk!
I think hard everyday about what we can do or where we can go that will keep him from watching TV all day. I make him play games but even this is tricky as a caregiver because since he has cognitive issues, he loses any game that requires strategy or planning. I have found the best games are the ones involving chance so sometimes he wins and sometimes I win but at least he’s doing something other than TV!
Finding places we can go that he agrees to is tricky also. And when he agrees, the question becomes to take his scooter or not? He can still walk but it is a chore for him. If he scooters everywhere, however, he’ll just get weaker and weaker so I try to get him to do both (walk sometimes and scooter sometimes). Because my husband does not sweat, he cannot go outside in Florida, where we live, in the summer. We go to the mountains for 2 months in NC where the average temperature is about 75 and going outside is much more tolerable for him. There are lots of outdoor concerts, and even though he does not like many of them, I make him go to just get a change of scenery and some fresh air. Here again, however, notice the word “make”. Keeping him healthy sets us up to have lots of conflict in our relationship. As a caregiver, the art of “making” them do healthy things is very challenging.
My sister’s husband is overweight, as I imagine many older men are (or women of course). Getting your partner to eat healthy is another challenge for many but the consequences of not doing so grow as you get older. In my case, because my husband is on formula for his feeding tube, getting him to eat at all is my challenge. As blood pressure , heart issues, and diabetes issues set in, avoiding salt and sugar and fat often becomes a point of conflict in relationships between partners.
My question is this — should we push our partners to make healthier decisions in their lives or should we let the choice to detiorate be theirs? Whenever the conflict starts to really upset me, I break down into tears and ask my husband, “Do you want me to let you detiorate? Is that really your preference?” So far, he always responds to the tears and apologizes for giving me such a hard time and agrees that he wants to do the healthy things I am asking him to do. As you can imagine, however, this is not a healthy dynamic nor an easy one to live each day. I have other friends, however, whose partner refuses to change their life style and keeps heading down a path of self destruction. This, too, causes lots of stress for the other partner because watching someone do that is very depressing!
This leads me to my last thought about caregiving for the day. Caregiving is a very lonely job. If one of you is much healthier than the other, you are going to have to give up hobbies you used to do together and decide whether you will still do them without your partner? We used to scuba dive and ride motorcycles and I gave those up when my husband could no longer do them. But the list gets bigger as their health issues get bigger. With my husband not eating, going to to restaurants is no longer something we do together. I still go out with friends occasionally but not as often as I’d like because I don’t want to leave my husband home alone while I have a delicious meal. It just doesn’t feel right. In fact, on a feeding tube Facebook page I am on, there are relationships that have ended when one partner has to go on a feeding tube! I tell myself that since I am overweight, and still working on losing weight, that not going out is healthy for me too (and saves us money), but still enjoying a nice meal out is something I miss.
Travel is another issue as you age. With my partner eating formula and using a wheelchair, travel is no longer easy for us to do. I love travel. Together we both loved travel and did much of it. Now, my husband does not want to travel because it causes stress for him and he worries about what could go wrong. So, do I give up travel too? In the beginning of this caretaking stage I said yes, travel is no longer in our life. But as time goes on (he has been sick for several years) I am questioning that decision. I really miss travel and who no longs how long I will be healthy enough to enjoy it? So do I travel without him and if I do, who will be the caregiver while I am gone? Do I make him travel with me and manage all the details regarding his disability (which I did recently to fulfill one of his bucket list trips). Traveling with formula and wheelchairs and lots of medications is not easy.
We are at the stage where I am going to have to find an alternate caregiver for when I am not home — whether it is for personal travel or just events such as weddings and birthday parties he does not want to attend any longer. I know that this, too, will cause conflict. He has a choice of going with me or having a caretaker come to the house when I am gone for extended periods. He will not like either of these choices. I also know this is a common old age issue. Aging parents do not want to go into assisted living facilities or have caretakers come into their homes. In this case, it is not my parent, it is my partner whom I live with everyday. We have not crossed this bridge yet, but it is coming soon. Not only do I wish to travel for the pure pleasure of it but I want to travel to see friends and family who are also aging and won’t be around forever and my grandchildren whose childhoods I am missing.
Loneliness sets in when you can’t go to the parties you used to go to, you can’t have a day at the beach, you have to do many things alone that you used to do together as a couple, and you can’t just hop in the car for a weekend getaway without tons of planning. Caregiving is a job that is hard and only gets harder as your partner’s conditions worsen. People don’t plan for these situations and I am not sure if you really could, but having the conversations BEFORE you are in the situation is something I highly recommend! Think about where you live and who your support system will be. Think about proactively developing such a support system — join a church, move near your children or close friends, live close to doctors you trust, live in a 55+ community. Without a support system, you will be alone taking care of your parnter!
Luckly for me, my husband’s disability is related to being a veteran and the VA offers caregiving assistance and support groups. I have decided I want to join such a support group because unless you are a caregiver, you just don’t understand the emotions that go with these issues. I need to talk to someone who understands, network with others who might have helpful information and just vent to maintain my own mental health. I highly suggest, that even if you are not a veteran, you seek out such groups at churches, hospice and your local community centers. This job of being a caregiver is frought with emotions and logistics which are very hard to navigate on your own.
Like this blog says, “Old Age is Not for Cowards!” Feel free to share resources or your thoughts with me on this topic!